This message was posted by Carie on January 31, 2004 at 14:36:53:
(In reply to: Meckel-Gruber Syndrome, posted by Renee on January 27, 2004 at 11:41:22):

 

Re: Meckel-Gruber Syndrome

Renee,

My daughter has Meckel-Gruber Syndrome as well and she is 2 years old. I could not find anyone else with living children until recently I found your friend Irene. Please tell me about Patrick! My e-mail address is above. Hope to talk to you soon!
Carie

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