This message was posted by Renee on January 27, 2004 at 11:41:22:

 

Meckel-Gruber Syndrome

I am looking for others who have children diagnosed with Meckel Syndrome of Meckel-Gruber Syndrome.

I know most die....but my son has it and we have found 6 others with children still alive with this syndrome....

We are here to support each other...if this is you and you want info and support...please contact me...

Hugs,

Renee

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